cv-F911-6C1E-AD4A

publicações selecionadas

• artigo académico

  • Parent-centred communication in Neonatal Intensive Care Units: needs and sources of information.  Annals of Pediatrics.  2023
  • Quality of Life of Mothers and Fathers 4 to 6 Months After Birth: The Effect of a Very Preterm Delivery.  Maternal and Child Health Journal.  2023
  • Public and patient involvement in health data governance (DATAGov): protocol of a people-centred, mixed-methods study on data use and sharing for rare diseases care and research.  BMJ Open.  2021
  • Public preferences for involvement in the governance of health data.  Early Human Development.  2020
  • A public health approach to patient-centredness in embryo research.  Early Human Development.  2016
  • A Short Form of the Neonatal Intensive Care Unit Family Needs Inventory.  Jornal de Pediatria.  2016

• artigo de conferência

  • A public health approach to patient-centredness in embryo research 2016

• artigo de revista

  • Benefits and Risks of Sharing Genomic Data for Research: Comparing the Views of Rare Disease Patients, Informal Carers and Healthcare Professionals.  Healthcare. 2022

• capítulo de livro

  • COVID-19: Desafios éticos e sociais numa situação de emergência de saúde global 2020

• documento

  • Public participation in health data governance: a scoping review 2019
  • Needs and stress in parents of very preterm infants hospitalized in Neonatal Intensive Care Units: the effect of the data collection period 2014